I live with CHD my defect is called tricuspid atresia. My first surgery known as the “Fontan Procedure” when I was 9 wks old. Then at 4 yrs of age I had my major open heart surgery. I was told I would need further heart surgery at some stage, but luckily my first open heart surgery was so successful I have not yet needed it. My condition is lifelong and have regular check ups with ACHD team in the RVH every 6-9 months. It’s fantastic to be part off BraveheartsNI as each of us understand one & others daily challenges.